Testimonial from Charmaine
Simon
Date: July, 2022
Simon is doing really well on the PST disc -- he's had no incidents of hitting or impulsive behavior since we started it.
I decided to re-try the AM4 disc since I had seen some mixed results with it alone, together with the PST disc. The combination has brought more communication and a better mood for Simon.
It's been wonderful to see these improvements. He's had a great two weeks of camp and is more engaged overall.
Thanks,
Charmaine
Testimonial from Kyle and Cathy
Kyle and Cathy
Date: July, 2022
Another huge gain. We were at a lake last weekend. Our neighbors have a camp/house there. Kyle had to step in the water with his sneakers to get on the dock. When my neighbor told him that he might have to do that and that it would be OK, he did not hesitate and he put his foot right in the water. He would’ve never done that before. The fact that he got his sneakers wet without complaining was huge! I don’t like getting my shoes and socks wet and he did not complain once. When I brought it up to him he said, “it’s no big deal.”
While he has done some Respen-A™ again, I see the most gain from the PST. I love the subtle ways that I know that the patches are making a difference. It’s funny; when you really know someone you know how they will react or respond, and when it’s so polar opposite you are in awe in the moment. Another thing is that he is able to communicate better when he’s angry. He is using the zinc for pyroluria and he definitely knows how much it is working- he will request it first thing in the morning. And that takes care of anger issues almost immediately.
Thanks, Elaine!
Cathy
Testimonial from Cathy
Kyle
Date: May, 2022
I had to go to the store this morning to get the zinc to test for pyroluria. I really didn’t think I would be able to tell if it worked, because my son was heading off to program, and he was already very argumentative. Right before he left, I had him call my phone in the microwave… testing to see if the microwave seal was broken per the newsletter article…. It didn’t ring!
Then his ride was here, and he wanted to bring something with him. He picked it up and asked if he could bring it, and I said, “no.” Typically, if he’s in this space, he would continue to argue. He put it down and said, "OK." I said, "Wow, you didn’t even argue!" And he said, "I wanted to!"
That is enough for me. I know how he would’ve responded. And I know that he does not like to be that way or feel that way! It was very amazing, because I really thought there was no way the zinc would work that fast before he left for program. It worked perfectly! And, especially that he added that he wanted to argue. I absolutely knew it worked, because he has not been in a space where he can control the arguing, although he can a bit more with other people.
Thanks!
Cathy
I wish I had stumbled upon, or read, the newsletters before, and watched the videos and webinars that are on the Respen-A™ website. Talking with Elaine is absolutely wonderful, but this is, like, amazing! It’s putting everything together in my head, and how I had felt about not wanting to go down rabbit holes, or just taking care of one problem and creating another problem! I work in education. I used to work in special ed, and I work in crisis at least one day a week. Hence, why I’m so frustrated and I feel so bad for people not getting the help they need!
It’s so funny, because there’s so, so much information, and it's quite overwhelming, but as parents and as mothers, we know our kids best! After working in crisis, I’m not as frustrated with doctors as I used to be, because it takes time for them to explain things to us- just like it takes time for Elaine to explain things-, time, AND information that they don’t have. What is so much more frustrating is the money that parents will pay out for all the therapies and workers in hopes of seeing progress, while just masking symptoms rather than getting to root causes. This is especially heartbreaking for the individuals, like my son, that could be independent with any help that gets to the root cause! Back to the videos and webinars!
Cathy
EAGLE SCOUT AT LAST!
Tyler
Date: March, 2022
Tyler, age 17, earned the rank of Eagle Scout with the Boy Scouts of America in October of 2021. Tyler was one of the very first children to use Respen-A™ following his diagnosis with autism. He quickly transitioned from a special-ed preschool into mainstream kindergarten and never looked back.
In June of 2020 Tyler switched to the PST and AM-4 discs and has seen even greater gains.
Tyler's Eagle Project was the installation of four long-lasting, all-weather benches at the Bigfork Community Cemetery.
"Earning the Rank of Eagle Scout has been a goal of mine ever since I first started scouting. To reach this goal after 11 years of dedication has provided me with an unimaginable sense of satisfaction. From my walk on this trail, I have not only learned about what it means to be a scout, but also that persistence is key. If you have persistence, there is nothing that you can't accomplish."
Congratulations Tyler on a job well done!
Testimonial from Kerri, MT
Date: January, 2022
A Parent's Experience With PST & AM-4
If you have an issue with phenols then there is already a solution with the PST disc. In fact, my oldest son used Respen for 11 years, and that was great. But once Elaine developed the PST disc we tested it several times against the Respen and he has even more gains with just straight PST. So now, that is all he uses, except… wait for it… he also uses AM4, which Elaine had developed years ago and then shelved, and then realized that it needed to be tested again. Her original thinking was that it was for something totally different (it helps resolve dementia), but then through research she realized that it could help with clearing stored alanine and that she needed to retest in people that might have that issue. Hence, my son. The AM4 is used one day on, two days off, in conjunction with the PST. We see even more benefit with adding this.
(Kerri, MT)
Testimonial from Suzanne, WA
Date: November, 2021
A Mom's Experience With the PST Disc
Alex is doing well on the PST disc. I've been telling him to do things on his own a lot more, and he is. It's pretty great! I also have him make me tea every day. He isn’t vacuuming or washing dishes yet, but he LOVES doing laundry!
We have been using the new (PST) disc for about 9 months. Alex actually started waving back at me when he leaves on the bus. I have been waving goodbye for over a decade and this is the first school year that he is waving back!!!
(Suzanne, WA)
Testimonial from Jenn, WA
Date: November, 2021
A Parent's Experience With AM-4
I have to tell you how thankful we are for what you’ve developed.
Gracen has struggled so much over the past years & has never been invited to a birthday party, or had even one friend show up at his own birthday party. He had a roller skating birthday party in September, and he had friends come!!! You cannot even imagine what a big deal this is- Gracen has spent recess time since kindergarten on the buddy bench with no friends & no desire to interact with others.
While Gracen is so pleasant and thriving socially this year, we still have some hurdles to overcome to see more gains, and I will call you to explore more options to help us get there. Our psychiatrist/IEP rep says "we are not going backwards to using drugs again. If you have to put two patches on him to make things better, then do it!"
(Jenn, WA)
Testimonial from Kerri, Montana USA
Tyler
Date: September, 2021
My son, Tyler, age 17, has been testing the PST disc since Spring of 2020. We switched back to Respen-A™ every few months to determine which we saw greater benefit from, and it is clear that PST was favored. Ultimately, it was due to the ease of using the disc while not having to supplement calcium, but there were no losses in gains from switching, and the PST had a slight advantage in having him be more kind as a teenager.
We began testing PST with the AM4 in late Spring 2021. The differences are notable: Tyler now self-directs his school work, even spending time doing homework on weekends, rather than me having to constantly remind him. Prior to AM4 Tyler was a procrastinator, now he is driven and self-motivated. Prior to AM4, Tyler would not wear trousers- he'd missed out on a fancy Mother's Day Brunch, and Thanksgiving Buffet due to his stubbornness. Now, with AM4, he wears jeans and slacks on his own initiative, even on hot days.
Prior to AM4, Tyler could care less whether or not he finished his Eagle Scout Project...it had dragged on for over a year and his only excuse was that the beneficiary was a 'snowbird', who lived in Arizona from December till June, that didn't want anything done without her here in Montana. Once on AM4 Tyler hit the ground running and wrapped up the project (installing 4 benches on concrete platforms at a local cemetery) in two weekends. He will complete his Eagle Board of Review this weekend!
Tyler is studying cello this semester and sometimes practices four times a day. Prior to AM4, when studying violin, I couldn't get him to practice once a week! There are more benefits, but I think this sentence from Tyler to me last Friday sums it up: "Mom, you thought it was autism all along, but it was just me being a teenager".
Testimonial from Kerri McCormick, Montana USA
Kyle McCormick
Date: March, 2020
My son, Kyle, has been a unique delight since he was born. As soon as the nurses received him from the doctor following his birth, the room was filled with oohs and aahs and their comments about how handsome he was! This didn't happen with the birth of his older brother, so of course I was flattered.
I am not boasting when I say that Kyle was smart as a whip from his moment of birth- he had those nurses wrapped around his tiny finger! He would look at us with knowing eyes, as if he could see straight through us and into our minds with a penetrating intelligence that seemed far beyond his youth. The first time we brought him to church an elderly lady who'd been a school teacher asked to hold him. Once our baby was in her arms she looked up at us and declared (prophetically, it seemed) that he would be an engineer.
Kyle was a very independent baby. I remember him climbing out of his crib before he was one year-old, which seems incomprehensible to me now. He wasn't one to love snuggles- until he wanted one. At that point he would climb into my lap for a hug, then, within moments, push away to seek new interests. He used to find something that he thought was special, crawl over to me and open my hand, place the item in my palm and curl my fingers back over it, look me in the eye then crawl away.
As Kyle grew, so did his skills, talents, and wisdom. He would gather items I'd thrown into the garbage and create incredible gadgets out of them. He's had a gift for drawing since he could hold a crayon. He is self-driven with home school and rarely needs help. In fact, his older brother often benefits from his guidance. He is now, at age 14, Senior Patrol Leader of his scout troop. He seems like a golden child; he is ALWAYS finding money, ALWAYS winning raffles, ALWAYS observant and helpful where others disappoint.
So you can imagine my worry when, a year ago, he presented with symptoms of anxiety. I didn't recognize it at first. He'd 'want to talk with' me at day's end about innocent topics like, 'should' he buy comics at the Comics Arcade. Only the talk would go on and on and on: should he sell some comics to the owner? If he kept only wanting to sell comics then the owner wouldn't like him or wouldn't want to buy from him anymore or would think he was wishy-washy, etc., and maybe he shouldn't spend his money but maybe he should save it. Should he go into town on Saturday to go to the comic shop or should he stay home? The questions were endless. He'd say, "I just have one more question", and that line of reasoning would go on for another 30 minutes till I'd say, "You've already asked that question", and he'd respond, "No, I'm asking it in a different way". Finally, I'd end it because 10:30 p.m. was now extending to 11:30 p.m., the questions kept heading down a rabbit trail, and I was exhausted and wanted to go to sleep.
Night after night Kyle would start a new topic or revisit an old one. It finally dawned on me that my son was experiencing anxiety. In retrospect I could've saved both of us many weeks of stress by recognizing the signs, but I'd never had personal experience with anyone suffering from it. Fortunately, I knew how to solve the problem because I had Respen-A™ on hand- it also works for Bipolar disorder, ADD, ADHD and depression. Kyle was anxiety-free on day one of use!
The only hiccups I've experienced since are Kyle's complaints that he doesn't have anxiety and that he doesn't want to be on Respen-A™ for the rest of his life. He assures me that he is just fine and that he doesn't need to use it. Every time he puts it to the test by going without, he wants to have a looooooooooooong discussion with me at the end of the day. With Respen-A™ this doesn't happen, which is a huge relief. We wouldn't want him to be an anxious engineer!
I am very grateful to Elaine for her development of the Respen-A™ disc, and for her continued research that helps our kids to further wellness!
Testimonial from Justy Mayernik
Kyle Mayernik
Date: January, 2020
Kyle is now a Junior in High School and has been using Respen-A™ since March of 2015.
His diagnosis of Asperger's was given just before he turned 5. With the diagnosis, we removed wheat, gluten, dairy, eggs, citrus, artificial flavors & colors, nitrites and nitrates from his diet. This gave us incredible results and success for Kyle as far as his focus, meltdowns, impulse control, social skills and digestive issues for 9 years.
Fast forward to March of 2015 when I met Elaine DeLack who brought us on this journey.
She shared the results of Respen-A™ and the families it had helped. I was a little reluctant to try it because that meant Kyle could eat a regular diet just like the rest of us, and going back to the behavior and digestive issues he faced early on terrified me. Yet the prospect of helping him with his cognitive function, memory recall, and so much more, outweighed the worries of his behavior issues related to the food he ate.
To this day, he has had no side effects related to the food he can now eat.
After having a tutor for 5 years, Kyle was finally able to navigate homework on his own, ask for help when needed, and tested out of his IEP his Freshman year in High School.
His working memory, memory recall, and ability to focus is better, as well as having quick wit that now matches his Dad.
You would never know Kyle was ever diagnosed with Asperger's, and Respen-A™ is a part of that transformation in his life.
Sincerely, Justy Mayernik
Testimonial from Suzanne
Date: October, 2019
The Respen-A™ significantly reduced my stress level immediately. I didn't realize how much anxiety affected me until it was gone.
I think I have been in a constant state of anxiety for years because of the stressful environment of having an autistic child. It's like my brain wasn't able to relax. I am an introvert, but I was staying home almost always because leaving the house had become so stressful. Now it doesn't bother me at all. It's such a difference - immediately!
I have been very tired - and I've been feeling like I'm dealing with some die-off from toxins or something. I've reduced my sugar intake and I'm not eating before bedtime like I used to - it was like stress hunger.
Also, I have been trying to lose weight for years, but haven't been able to even when I have tracked my foods. I started Weight Watchers about the same time as the Respen-A™, but I think the disc may have helped too.
I've actually lost a couple of pounds - which doesn't seem like a lot but it's a great start for me. I have gained a lot of weight in my torso over the last several years. I suspect my weight issues have to do with all of the stress as well. Anyway - that's an added bonus for me!
Suzanne
Testimonial from Robbie Aldridge
Date: October, 2019
We have seen Dr. Soliman twice and will be returning for a third visit in early November. Unequivocally, I can say that seeing him was the best decision that we have made concerning our son’s recovery from autism. That is a big statement considering all of the doctors and therapies we have tried over the last 12 years.
I would never want to mislead someone into thinking that this journey with Dr. Soliman has been straightforward progress. On the contrary, it has been a roller coaster. However, it is a ride that is necessary and will lead us to complete healing. That being said, the highs on this roller coaster have been better than anything we have ever experienced.
We have seen improvement in every single area of our son’s life. His sentence structure has become more complex, and speech has always been an area of difficulty. He did not really begin talking until he was 7, and it was only one or two words at a time for several years. Any time we would begin treating him for any one of the myriad of infections he harbors, he would always regress back to two words maximum. This time, his ability to communicate has not diminished- leading to a lot less frustration on his part. Schoolwork is much easier as he is able to focus more. He is a lot less fatigued and regularly wants to engage in physical activity. He is more social, initiating games and conversation with others, and he has the ability to stay focused long enough to finish a game. His 17 yr old sister commented to me on how much progress he was making. She rarely comments on anything, reminding me how significant his growth is.
All of these things have occurred in a very short period of time. His first visit was in the middle of July. I can only imagine how far he will go in the one year time frame Dr. Soliman estimated!
For those rough patches due to healing crises, we have found that large doses of magnesium coupled with ibuprofen provide the best outcome. These crises will become fewer and farther between as the pathogenic load he is carrying lessens.
For anyone who is still unsure about seeing Dr. Soliman, I felt the same way. My only regret now is that we did not make an appointment sooner!
Robbie Aldridge
Atlanta, GA
Dr.Nader Soliman, M.D.
Testimonial from Suzanne
Date: October, 2019
Dear Elaine,
I went to Alex's autism reassessment meeting at the end of May, 2019. He no longer needed physical therapy services as of about 6-9 months prior.
In April, the team proposed that he no longer needed Occupational Therapy, but they are extending the services for a year because Alex will most likely be moving into a new program, and they want to make sure he has all of the services he needs.
The new program focuses on more social, group and practical skills. Alex will also continue his academic work. He is currently in a classroom with one on one support, but his current teacher feels like he is ready for more independence.
At the last meeting, the head of the program said, "Alex could get a job someday...", which was a little surprising to me because I have accepted that he may never be that independent, but I'm allowing myself hope again!
Alex's teacher, support staff and school program are all definitely helping him advance, but I know that Respen-A™ is allowing him to access his abilities and grow to his potential.
Finding out about him moving schools took me a little off guard, but we are very excited! I've included Alex's 7th grade school photo. This year he’s smiling and looking at the camera, which he has done once before but the teacher had to work really hard for that picture (and they probably took several pictures). This year – he is smiling naturally when asked to smile – not much extra work.
Respen-A™ Mom, Suzanne
Testimonial from Gaby Van den Berg
Date: October, 2019
I've wanted to write for some time to share how things are going, but I have been so busy. Tybalt was doing well, but I had the feeling that he did better if I gave the 5-htp every 3 hours.
I've wanted to ask if this was okay*, but as I mentioned, I’ve been extremely busy- not just with Tybalt, but also with my work. As a result, I've been sleeping poorly, and this morning I was so exhausted.
Working with Tybalt this morning, I thought it strange because he seemed to have trouble concentrating on the reading, but I figured maybe it was my slow energy influencing him.
Afterwards, I went shopping, and once I returned home I found that Tybalt was extremely agitated; screaming, and talking about wanting to go to the dark side. I hadn’t seen this for ages. I asked the helper if he had given the 5-htp, and he said no. That’s it, I figured, and gave Tybalt the 5-htp, but then I remembered your story of when your son was the same way and had locked himself in the car.
It suddenly dawned on me- in my tired mood- that I had forgotten to give Tybalt the Respen-A™ earlier that morning! I gave it to him, and 1 hour later, he was his old, sweet self...or should I call it the new Respen-A™ self? 😊
Gaby Van den Berg
Testimonial from Gaby Van den Berg, The Netherlands
Date: August, 2019
Dear Elaine,
I want to share some more information on how my son, Tybalt, is doing with the Respen-A™.
His speech has improved. With this comes reading, focus and comprehension. Before Respen-A™, his reading skills were low. Instead of separating out words, like 'can think', he would read one word, eg; 'canthink'. Now, at just two months on Respen-A™, he has advanced from a third grade reading level to fourth grade, and he separates the words.
His comprehension has increased- I can ask him questions about the book he's read and he can answer every one, whereas before, he couldn't tell me anything.
Prior to Respen-A™ my son's interest in others was lacking. He would rarely ask questions of others, and when he did they were at a 12 year-old level instead of the maturity of my now 20 year-old. He is now engaging in the lives of those around him, asking more personal and complex questions. For example, he will ask his sister "what are you watching"?
His vocal stimming has decreased markedly. In transitional situations- like going outside, or going to bed, it was a 10. Now, just a couple months on Respen-A™, it is less, and he will lower the noise when I ask. Even though he can’t stop it, yet, he stims for a shorter amount of time.
I have noticed a slight improvement with bowel problems, and the OCD has gone from a 10 to a 7. One of his OCD behaviors is collecting papers. Yesterday he had pulled old papers from a day calendar and put them on the coffee table in the living room. I said that I didn’t want them laying there. Before the Respen-A™ that wouldn’t have had an effect. Now he said, "I will take them to my room". "Okay", I said, "you can take 2 pieces". He went upstairs and collected a bag, and then took about 10 pieces (left the other 40 on the table) and brought them upstairs. He then reminded me that we had to throw the rest away, and I said, "Yes, can you bring them to the box for recycling"? He replied, "Yes", and picked them up and brought them to the box.
Tybalt's self help skills have also improved. Before, he could attend to his needs at about a 50% level. Now he has started shaving himself, and he brings his plate to the kitchen when he is finished eating. He has started brushing his own teeth, and shaving, and doesn’t want help with this any more. It’s as if puberty and maturity suddenly started with the Respen-A™! "I don’t need your help anymore", he says, even though he is not doing it perfectly, since he only wants to brush the lower teeth.
Oddly, he now has body odor from sweat, which is new. He's also less hungry in the afternoon. I can only assume that the Respen-A™ has improved his digestion- I've read it helps with digestive enzymes and gut issues.
Overall, my son seems to be older. Last week he dropped his shaving machine and the part that is used as a trimmer broke. I had asked him a few days earlier what he wanted for his birthday and he said, "I don’t know". The morning after dropping the shaving machine he suddenly said, “Mom, you can buy a new trimmer for my birthday”.
We are still seeing gains and look forward to more!
Thank you, Elaine!
Testimonial from Charmaine, Ohio
Date: August, 2019
We began using Respen-A™ for our then 9-year-old son in April 2018. After just a day, I noticed increased awareness. I continued to notice positive changes and eventually was able to expand his diet to include gluten, dairy, and all kinds of foods that he couldn’t tolerate before.
However, beginning in September, we started to struggle with the discs, no longer getting consistently good results. We tried adding back in some supplements, and tweaking his doses of calcium and magnesium, but nothing seemed to enable us to reach a steady state. Some days it seemed as though the disc was not working at all, while other days it seemed to work at least somewhat well.
Recently, while reading the Respen-A™ newsletter, I re-read the announcement about owning a microwave that leaks radiation. I hadn’t thought the problem applied to us since we store our discs about 6 or 7 feet away from the microwave. Regardless, I decided to test our microwave using my cell phone, and discovered that it was definitely leaking radiation!
We quickly purchased and installed a new microwave, and also ordered new discs. It became obvious that these discs worked better – our son has been calmer, less agitated and has had more focus since we began them. It’s only been a couple of weeks, but we are hopeful that he will continue to make strides with Respen-A™ now that the discs aren’t exposed to microwave radiation!
Simon
To test your microwave to see if the seal is leaking radiation: place your cell phone in the microwave and close the door. Call that cellphone from a different number. If the cell phone in the microwave rings, you need a new microwave! Otherwise, radiation is leaking into your home and will destroy the Respen-A™ if it is placed too close to the microwave, and even while your child is wearing the disc!
Testimonial from CJ, New York
Date: June, 2019
Hi, Just want to let you know that my daughter has been really nice to be around! I was terrified to take her off the marijuana but now that we have she is improving! I'm very grateful!!
Testimonial from Gaby Van den Berg.The Netherlands
Date: June, 2019
Meet Tybalt
I want to share some information on how my son, Tybalt, is doing with the Respen-A™. We are seeing good gains. After the first three days of use, he began asking for the disc because it made his body feel better. He is also communicating and reading better, and has started doing self help skills like brushing his teeth and shaving by himself because he says he doesn't need my help with them now.
This is a list of what I have seen in Tybalt since starting Respen-A™ :
Verbal increase
Better reading
Body odor from sweat- this is new
Less intense verbal stimming
Less hunger in the afternoon
Less OCD
He started brushing his own teeth and shaving, and doesn’t want help with this any more. It’s as if puberty suddenly started with the Respen-A™! "I don’t need your help any more", he says, even though he is not doing it perfectly since he only wants to brush the lower teeth
He has more energy in the morning, less in the afternoon. I started giving 5 HTP because he was stimming more in the afternoon. This seems to have helped, but he has been lying down a few times in the afternoon since then. (NOTE from Team Respen-A™: 5-HTP produces serotonin, which produces melatonin...so he is sleepy)
When I wake him up in the morning I find that his sleeping is more relaxed. By that I mean his muscle tone is relaxed and he is sleeping deeply. He seems to have more energy because he gets up quickly after I wake him up (normally that could take half an hour and now it’s a question of minutes). He will then begin verbal stimming, as he always does, but about half an hour after putting on the Respen-A™ disc this becomes much less.
He is asking more personal questions. For example, the other day I told him I had finished reading two books. "What were the books about"? he asked with interest, and then listened while I explained the theme of the books.
He has now asked me to make a privacy sign for his door so his son rise team can’t disturb him- that surely sounds like puberty! We made a sign with private in red and on the other side welcome in green. He now can turn the sign so we know if we are welcome or not!
Testimonial from Mayra J. Arrendondo M.S., B.S., Biochemist
Guillermo Mayra's son
Date: April, 2019
Before Respen-A™, my son was verbal, but limited. When we introduced Respen-A™ his vocabulary exploded. His ability to recall or remember things gradually improved. Before Respen-A™, he was able to learn, but if we stopped practicing, he had to relearn things later. Now that his memory is good- I will say even better than good (as you can see from the video we shared on your Facebook page), when he sings he knows every word from the songs that he likes. Guillermo is able to focus on learning other things that he likes, too. He is able to understand and follow instructions easily, whether he is at home, school, the doctor's office, or any other environment.
My son is also more social and playful, and outgoing to the point that he now likes to tease us, and even to prank his brother. Yesterday, his brother got desperate with him, and raised his voice. So I corrected his brother, and Guillermo came into the kitchen where I was, with a smile on his face, knowing that he had pranked his brother successfully.
The only thing we are missing is for him to carry on a long conversation. As of now, we have understanding, memory, communication & socialization. All of this happened gradually, and I am anticipating that long conversations will happen in the near future.
I hope this gives you a clear picture of Guillermo's improvements. He has been on Respen-A™ since May 2018. His protocol is so simple- I only use Respen-A™ and Immunocal. I am so grateful, and consider myself so lucky to have been able to find out about these amazing interventions.
Testimonial from C Jones from Ohio
Date: April, 2019
This is the first Easter that our son has fully engaged in the Easter basket hunt -- he was able to read most of the clues I hid around the house, and was so excited to hunt for the basket. He kept talking about it afterward. Normally he just tags along behind his sister and doesn't really get the concept. So, we are making progress!
Testimonial from Caroline Koch
Austin
Date: March 7, 2019
Dear Elaine,
I just wanted to give you an update on my son’s progress from this past week. My son Austin is 10 years old, and autistic. I started Respen-A™ over a week ago, on a Friday. He immediately showed gains. The first day he was so calm, whereas before, he had been so aggressive and combative with me and his teachers. Anytime I said “no” to him, he would have a tantrum, or hit me or the dog, or throw things.
Two weeks ago, his teachers were talking about a different placement for my son outside of the school district. For me, Respen-A™ was a last ditch effort after many biomedical treatments that I'd tried hadn’t worked. I had planned on finally giving in, and medicating him, and had an appointment booked for late March to get prescriptions.
I can’t believe his overall change. The teacher on Monday, after only three days use of Respen-A™ , said he'd had a great day at school, with no behaviors! She texted me again on Thursday to say what a great week he’s been having, and that no behaviors were seen! He was even attending to reading, which is something he never did. He still can't read, but this new interest in having me read to him is a new beginning!
Austin is also talking more. He always had some language, but minimal, one to two word phrases. He has since been able to string longer sentences together, adding in prepositions, and even correcting himself when doing so. At the dinner table last night, my husband asked Austin a question about school, never expecting an answer, but he gave an appropriate response, and we were dumbfounded! That has NEVER happened.
Austin has definitely improved while wearing Respen-A™. This is all good news. I am so very happy to have found your product, and want to thank you for discovering this! It is amazing.
Thank you.
Caroline Koch
Article submitted by Tyler’s mom, Kerri
Tyler
Date: December, 2018
My son, Tyler, was diagnosed with autism at age 4. Following his diagnosis, all we'd known to do was to have him be GF/CF, because we definitely were not interested in putting him on the mind-numbing/stupor-inducing drugs that the doctor recommended. We saw the benefit of being GF/CF only in that we had no more meltdowns, but it did nothing for him socially, with focus, or anything else.
Tyler has been using Respen-A™ successfully for 9 years now, since age 5. From day one, within the first 10 minutes use of Respen-A™, I saw dramatic changes in my son.:
Initially, focus; I'd always struggled to have him be interested in any project for longer than a few minutes, or to teach him how to fit puzzle pieces together. Now, he was putting an entire puzzle together without help or meltdowns!
Second, social behavior; he played with his younger brother in our backyard for 1 1/2 hours, riding bikes, climbing trees, and playing in the sandbox, only stopping to come in for lunch. In the past, my 3-year old would leave Tyler as soon as a meltdown had begun, and come inside to sit by me on the couch as we watched Tyler (pre-diagnosis) in bewilderment.
Third, language; Tyler would only speak with my husband, myself and my other son, Kyle. Day 1 on Respen-A™ he was calling out the window to neighbors who had never heard his voice! And, that night, at bedtime, instead of speaking gibberish he had a real conversation with my husband and me, asking real questions about how our day went, how we felt and even offering advice!
That first day on Respen-A™ was nothing short of a miracle, with gain upon gain that did not end until we turned out the lights at bedtime- and even then the miracle continued, because Tyler had his first full night's sleep in years! I used to check on him throughout the night and had always found him sitting up in bed, eyes wide open...so heartbreaking to think back on.
Respen-A™ is a game changer. No more gut issues, no social or focus issues, no toe-walking or thumb-clenching, verbal vs. non-verbal, life and friends vs. isolation, frustration and anger. AND, no more problems with gluten or casein- in fact, gluten brings more gains because it releases the serotonin so the body can utilize it!
Tyler is a Life Scout on his way to Eagle, is a patrol leader in his troop, is on a year-round swim team and is ranked in the top 2 - 6 swimmers in the state in his favorite events, studies violin with a world class violinist, and studies composition, Latin, reasoning, math, debate and research in homeschool. I mention this because NONE of his coaches, teachers or scout leaders know that he has 'autism'. And because he is on Respen-A™, they will never figure it out!
Thanks to Elaine's research, Respen-A™ has given my son a normal life. My hope is that all children see the gains that Tyler has.
Testimonial from Salon, OH
Salon's son
Date: December, 2018
I started using Respen-A™ for my 14 year old autistic son in June of this year. Prior to that I'd sought and tried numerous dietary interventions, homeopathic treatments and nutraceutical programs. I'd let him eat gluten since day one of the Respen-A™, but had been giving him GlutenEase to help with digesting gluten. About a month into Respen-A™, I forgot to give that supplement a few times, and noticed no side effects when my son ate gluten or dairy. That's when I stopped giving him GlutenEase. In August, his integrative practitioner confirmed that he had no more food sensitivities!
I was still giving my son some homeopathic droppers and supplements at that time, because it was advised by his practitioner. However, his OCD behaviors continued, and his progress in social skills seemed to come to a halt. We had also not seen any improvement in his verbal skills. I was telling myself that this was just the way it was going to be for him, but was encouraged by Elaine and Kerri to try letting go of the supplements and allow the Respen-A™ to do the balance work in his body.
Honestly, I was scared to death at the thought of letting go of the supplements, fearing that my son would get worse again. Finally, I found my courage and decided to eliminate everything but probiotics* and FOS. Literally, the next day, my son started talking more, and he was even trying to crack a joke. He had never done that before! We were thrilled to see the changes in him.
It has been about three weeks now. We're still seeing little changes here and there. It feels so free to NOT have to keep track of supplements! I look forward to seeing how much more my son can do with Respen-A™!
*I did find out that one of the probiotics I was giving to my son had high concentrations of fruits and veggies that could present a problem with his MAO-A, which the Respen-A™ is trying to activate, so I opted for the 'clean' brand.
Here is a new report from the mom of the boy in the photo above: This summer we were on a trip for about a week and he was fabulous! He was trying out new food and was able to keep up with the schedule. There was no complaining, and he was very compliant- even with constant changes of schedule. This has been one of the best trips we've had so far!
Testimonial from Anastasia, Ilia's mom, Moscow, Russia
Date: December, 2018
My son is 7 y.o. His name is Ilia. Since starting the Respen-A™, my son has become more calm. He is going to school this year!
My husband and I have also noticed that his stomach pain is gone, his anxiety has decreased, he has become involved in his classes, and it is easier to negotiate with him. This is seen not only by us, but also by other people. Everybody tells us that Ilia has changed for the better.
Other parents ask what we are doing. I share the information that we apply the Respen-A™.
Testimonial from Respen-A™ Mom, Suzanne
Date: December, 2018
My husband keeps wanting me to message you with updates. He doesn’t get so excited and hopeful easily. Today, Alex peeled his orange in a single-pieced spiral; his fine motor skills have improved drastically since using Respen-A™! My husband says “That is off the charts different behavior!” We’re so excited!!!
Alex has been on a special diet for years. Now that his body can process gluten, KitKat is his favorite candy. For the first time in his life, I didn't have to remove any candy from his treat bag! (photo below of Alex in his Halloween costume)
Testimonial from Respen-A™ Mom, Suzanne
Date: October, 2018
We took Alex out to IHOP with us the other day and let him order whatever he wanted- he loved that. We only go out to eat a few times per year, and it's always to the same place (not IHOP). We always have a tablet to distract him, because he gets so impatient, and I order french fries immediately- but last Friday, the tablet stayed in my purse, and Alex waited for his food with the rest of us. He was a little squirmy, but he did a great job! That is a direct result of Respen-A™ ! It is very exciting!!!
Also - we picked up my mom, stepdad and nephew on the way to the restaurant. Before we picked them up, I looked at the tiny middle seat between my boys and asked rhetorically, "Who is thin enough to sit there?" Alex automatically pointed at Calvin- it was hilarious! That's new too! Thank you so much for developing Respen-A™ ...it's a game-changer!
Testimonial from Solon, OH
Date: September, 2018
My son has been on Respen-A™ for 3 months now. The last time I took him to his doctor's appointment, the doctor said that his food sensitivity is gone! I'm so happy! Some positive changes I've seen are that he is happier all around, able to follow directions quicker, and to adapt to more activities during the day.
His language development hasn't taken a leap- yet. I've noticed that he's been scripting less the last few days. I hope it'll become less, and less, as that impedes his learning and social interaction.
Thank you for all your help! I believe Respen-A™ is worth it. It feels great to let people know that my son is off a special diet and that he is free to eat anything.
Testimonial from Mayra
Mayra's Son
Date: August 26, 2018
Dear Elaine,
My son is showing obvious improvements that I am able to pinpoint, even though I have been away for 6 weeks. We started the patch May 16, 2018, and I've been wanting to update you to be able to give you facts with a solid basis.
I revisited your website with the purpose of really understanding why Respen-A™ works with my son. While there, I was really moved and impressed with Mathew's story- it's a beautiful story. My son was vaccine injured in July of 2015, so this has been a 3 year journey for us. He is doing great now, considering where we started, but it has been too slow for my liking.
My son's recovery has been unprecedented. Prior to Respen-A™, it had been taking too long, because I was doing it one supplement at a time- the number one rule for me is "do no harm". Within the first month on Respen-A™, the greatest immediate change that we noticed with my son was almost no stimming. We also began observing a gradual gain of understanding and comprehension. We've looked forward to the start of the school year in order to see these improvements reflected at school!
My son's diagnosis is Autism, PANDAS and the toxic effect of Metals (truthfully I think all of our kids have the same diagnosis, whether or not they have officially been given that label by a doctor). Before I had the official diagnosis, I had already started checking my son's viral titers, heavy metals, and neurotransmitters. Since I'm a Biochemist, I also did genetic testing, and ran his raw data through different databases.
My approach was to assume that nothing was working correctly, and to make certain that I could give him whatever support he might need to ensure that every biochemical pathway would work again- or that it could be supported the right way to allow for proper functioning...one pathway at a time. Also, my main strategy was to support his body at a cellular level, focusing on the mitochondria. The biochemical pathway that I'd left for last was the Biopterin pathway (his brain), as I was really intimidated by it, and inexperienced with it.
My son's tests showed elevated levels in all neurotransmitters. Because I am really curious, I am excited to go back and retest for toxic metals and neurotransmitters in October, 2018, after 3 months on Respen-A™, and will share our numbers with you!
Based on the data from your website, and my son's genetic susceptibilities related to MAO-A, I understand why I am seeing what I am seeing, and why my son has responded beautifully to the Respen-A™.
Let me explain; part of his protocol has been using the Ion foot bath by AMD (I now know to use that therapy sparingly since it interferes with calcium absorption!). According to his toxic test results- base line and a later one-, his toxicity level has diminished considerably. However, now that Respen-A™ is in place, his foot baths are coming out really dark and dirty. Based on the newest research (great August article BTW), since MAO-A is one of the greatest detoxifiers of the liver, by activating the MAO-A with the use of Respen-A™, the liver is actually able to do its job. This is why his detoxification has improved not only in test results, but also visually.
Now, since Respen-A™ has been able to make the MAO-A active, we have been able to observe significant improvements as follows:
- His sensory needs are reduced to a minimum (arm flapping, hand pressure applied to his face for sensory reward)
- He is more affectionate towards his grandma
- He uses more complete sentences, and appropriately used words like: "I am glad you are here", said to his brother
- He is able to eat pasta, and is tolerating gluten and food textures
Respen-A™ has worked so beautifully for us, and we are so happy with my son's progress. I believe in paying it forward, and I believe everything happens for a reason. My son's injury could not be only about him. The bigger reason for me is in helping other moms recover their kiddos. I've shared our story with lots of moms of kids with special needs (especially Autistic), and this information will be good for them as affirmation of my son's progress.
Thank you Elaine, for all your support.
Regards,
Mayra J. Arredondo M.S., B.S. Biochemist
Article submitted by CJ's mom, Raychell
Date: August, 2018
My daughter was born perfect! In every way. She was a delight and a joy! When she began to regress, it was a heartbreak. We missed her smile, her laugh, her warm snugly body. She went so far away that I, at times, resigned myself to having to put her in a home. I felt she wouldn’t know the difference anyway. I experienced a total and complete sadness that could not be dulled or made up for by the two amazing boys I had.
We have been fighting for our daughter. We have tried many interventions. We have experienced some successes as well. Unfortunately they are always unsustainable and she falls back.
Day 1 Respen-A™ there was a shift. CJ was happier. Day 2 was also good. The next few days and weeks were filled with me SMS-ing with the amazing Respen-A™ ladies! They are amazing and patient. Together we have been tinkering with the patch, tinkering with the amount of cream and adjusting some supplements.
Where we are right now: CJ is happy and much calmer. She has many more lucid moments. Her sentences are longer. She is producing more of a variety in her vocabulary. There is still vocal stimming, there is still scripting, and there is still low impulse control but all of it is tempered. The aggression and hostility are gone. We don’t miss it!
Testimonial from Respen-A™ dad, Jim S.
Date: August, 2018
Another leap came the other night when my other son decided to set up Karaoke in our house since all the kids sing, and Ben found the microphone and began singing some verses to songs he could remember. He and all of us had a wonderful time. He did not have the awareness to do that before Respen-A™ . We love what you guys have done!
Testimonial from Respen-A™ Mom, Suzanne
Date: June, 2018
"We started going through just a few of the developmental milestones a couple of days (after the May 2018 Newsletter arrived), and Alex has been so much more interactive already. Today he initiated playing with a few toys - and we even played together. It was fun, not forced. I noticed his motor skills have improved. Without even asking him, Alex came and sat down at the dinner table (we usually have a tantrum). Tonight he played games with me and sat through Toy Story! He never does that. It is unbelievable how he has grown in just a few months!"
Article submitted by Andrew's mom, Jane
Andrew
Date: June, 2018
Andrew is 11 years old, and is a very smart, outgoing, creative and kindhearted boy. He has been taking Respen-A™ for 3 months. We first used it as a month trial, to see how he would react to it. Within the first few days, I noticed that his attitude had improved so much that we decided to keep him on it, and that has been a blessing ever since!
I really noticed the biggest difference when we went a couple days without Respen-A™. The weekend had come, the routine had adjusted, and I forgot to put it on. It was like a night and day difference from when he was taking it, to the few days with it off.
Respen-A™ has helped Andrew with his anxiety- he can now have a normal, calm conversation with us without getting tense and defensive. Before, we couldn’t ask a question without him getting upset, and eventually, he would just shut down. If we asked him to do a chore it was like pulling teeth, a constant battle- not saying it goes away, but the aggression behind the attitude has dissipated.
Respen-A™ has helped Andrew with school while staying focused, keeping anxiety levels down to be able to focus, and being aware of his actions. We have also seen his grades improve! Andrew now, without me asking, puts the Respen-A™ disc on himself every morning, because he knows I have my hands full with our other two children. We couldn’t be more proud of how well he behaves, and his attitude towards us! We still struggle with normal,everyday, teenage boy stuff, but now it’s tolerable. We can’t wait to see where we are a year from now!
Article submitted by Alex's mom Suzanne
Alex
Date: May, 2018
Alex is 10 years old and has been taking Respen-A™ for almost 4 months. Almost immediately after starting the patch, he was calmer and less combative. He is more flexible now. An example is our after-school routine. When Alex gets off the bus, we take our car to pick up my older son. Before Respen-A™, Alex was very upset because the last thing he wanted to do was get back in a vehicle. Most days were a struggle. It is surprising how something so trivial could cause so much stress. After a couple of months of using Respen-A™, Alex has no problem going to pick up his brother after school. He now seems shockingly happy to go!
One of our main concerns is bathroom use. We have had him on a strict bathroom schedule since he was young to avoid accidents. We only really had to worry about accidents in the evening before bedtime, but it was very stressful. We would take him to the bathroom sometimes every half hour and still have a mess to clean up. Almost immediately after starting the patch, he became more self-sufficient. The issue has been resolved! He is no longer on a specific bathroom schedule. It is AMAZING! My husband says that if this was the only benefit from using Respen-A™, it is worth it!
Speaking of bathroom issues, the other day Alex was upstairs longer than usual, so I went to check on him. I found him by the stairs, and we went into the bathroom. The toilet had some toilet paper in it and it looked like it had overflowed (not the best toilet). There was no water or mess anywhere, but a couple of wet towels. Alex had cleaned up the mess and done a great job! That has never happened before, and I am certain that this behavior was because of the Respen-A™.
Our other main concern is communication. Alex is talking more- he only says a few words at a time, but he is more vocal and uses a variety of words. He asks for help quite a bit. He also responds more often to what we say. His comprehension seems better than before the disc, and he is getting better feedback from school as well.
We are very happy with Alex’s results so far, and I am actually surprised that he will keep the disc on his back. Before Respen-A™, he wouldn’t even keep a bandage on when he needed one! Now, he will ask for his patch- he must notice the changes too!
Article submitted by Austin's mom, Janet
Austin
Date: April, 2018
Austin, 26, has been on RespenA™ for about a year. It has helped him control his obsessive thoughts and speech about dates, times and events. It has also dramatically lessened his disappointment when there is a disruption or change in his expected schedule. Life became much easier, and much more enjoyable for him when he was able to relax about potential and actual schedule adjustments!
Austin is a talented, intelligent young man who lives life to the fullest despite having minimally verbal autism. His days, by his design, are full from beginning to end. He works two part-time paid jobs, and volunteers at three more, including ushering at a local playhouse so he can watch the plays for free. Because of his deep love of learning, he audits a college class every semester, currently microbiology. He takes piano lessons, and enjoys all types of music, especially classical.
An avid exerciser, Austin works out at the YMCA ,or at home daily, lifting weights, swimming and logging about 35 miles weekly on the treadmill. He also enjoys travel, and his favorite cities (so far) are San Francisco, New York City, London and Paris!
Austin enjoys being involved in his community, and meets people he knows at every turn. He is our local autism ambassador! We look forward to further improvements for him as we begin to implement new tips that we've just gleaned from Team Respen-A™!
Testimonial from C. Jones
Date: April, 2018
We are seeing great things with Respen- A™ for our son - increased language, increased interest in reading, better mood, and learning, finally, to ride a bike! I feel like a light switch goes on when he gets his toast!
Testimonial from G. J., mom of a 5-yr-old Respen-A™ user
Date: April, 2018
Before starting Respen-A™, my son had been on a GF/CF diet for two years. I wasn’t familiar with inositol, so I chose to give him some gluten even though I felt quite uneasy about it. I began by giving him just a little every day. My son usually behaves as though he drank 5 coffees in the morning, and I was surprised to see that when I increased his dose of gluten, he became much calmer.
Testimonial from Respen-A™ Mom, Suzanne
Date: April, 2018
Alex just had his IEP, and PT was removed from his services because "Alex is able to access his educational environment successfully without the need for assistance to do physical needs." He will be starting a mainstream PE class soon as well!
The speech therapist was very excited because she used a communication app, and he did great with it. We've tried them in the past and he was never very interested in them. He was using the app at a higher level than they expected. At this point, we are mainly concerned about his communication - so this is AMAZING!!!
Testimonial from Angie
"On the original Respen-A, Keagan showed steady progress in his ability to communicate and his social skills. He would engage in play with his class mates and family. He is able to control his mood and outbursts very well. When switching to the new Respen-A, I noticed a slight change in each of his abilities. It’s like it fine tuned the progress he already gained. He seems more interested in things happening around him and asks a lot more questions about things he doesn’t understand or know. His speech has changed slightly, in the respect of him trying harder to communicate and trying many new words he never used before. He is much happier and seems to laugh and play more with the new Respen-A. The best way to describe the difference I noticed in the two formulas, is there wasn’t a huge definite change, like I noticed in all the previous versions, but it improved on and fine tuned the changes and progress already obtained. I definitely like this new version and plan on continuing use.”
Testimonial from Shelley and Kevin Lutz
The following is a summary of updates from a parent whose 8-year old son, Kevin, had been using the Respen-A Blended Chord for several months prior to switching to the new Respen-A disc. The parent reported seeing improvements in her son with the Respen-A Blended Chord but much greater gains have been seen with the new Respen-A disc.
Increased patience even at Christmas time with a lot of people around. Everyone present commented on how good he was. He carried on a conversation with those present and even initiated conversation by asking questions. This was new for him especially with several people being in the room. He actually had fun this year opening presents. In the past, Christmas has been too much commotion for him to deal with.
He is now playing with his toys for extended periods of time whereas before he would only play for a few minutes and then lose interest. He also is asking for others to join him in play which is something new.
His vocabulary has greatly increased and he is using longer sentences.
He was able to sit still while getting his haircut.
He is being very helpful—folding clothes, washing dishes.
His teachers at school who were not aware of the change from the
Respen-A Blended Chord to the new Respen-A disc, have remarked that he is doing very
well in school. He is standing in line quietly, talking more and asking the teachers
questions. He is being very helpful in the classroom such as passing papers out to the other
students when asked. He is playing with other children at recess and patiently
waits his turn such as when playing jump rope.
Interestingly, after only one day of not wearing the new Respen-A disc due to delayed
shipment of the next month’s supply, he threw his calendar outside into the snow because he
was upset. After two more days the disc arrived, and he again had a great day at school which
has been maintained while using the new Respen-A disc. He is now receiving “Excellent” on his
daily reports from school. After resuming the new Respen-A disc, his mother asked if he
remembered throwing his calendar outside into the snow, and if so, why did he do it. He replied
that he threw it to get someone’s attention because he was hungry but he couldn’t use any
words. With the Respen-A disc on he can verbally communicate.
Following are the actual emailed updates from Kevin’s parents, who have given MedDEV
permission to publish these emails. The emails are listed from earliest to most recent
to portray the timeline of these improvements.
Date: December 19, 2012
Kevin Lutz is trying the new Respen-A patch 12c-12c.
Kevin is describing new things. He laughed because his sister was peeking around the
corner. He is saying new words.
He is reminded his dad to eat breakfast.
He reminds mom to take off the patch at nighttime.
He just gave his dad some water in a glass. He has never done that before!
He has been alot more quiet and calm. Before he was loud.
He answers our questions right away. That is new!
He listens better!
His answers are very clear. Before he was quiet when he answered us.
He has been laughing alot more. He seems very happy!
We asked Kevin if he liked the new patch. He said “I like the new patch instead of the other patch.”
He asked us to turn the channel instead of just turning the TV off.
Kevin moves his hands a little bit more with this patch than with the other patch. For example, when he sits down, he moves his hands in the air, just for a little bit.
He is saying alot more words with this patch. He is talking a lot.
Date: December 21, 2012
Kevin is still quiet and calm. He is becoming a very good listener. He is
doing so well with this new patch!
The teachers said he did all his work very quickly and did a great job. He
gets graded everyday at school. He received an “E” for excellent all week. The
teachers said “Good job Kevin!” They were all very proud of him!
They had a Christmas program at school. Kevin sang and danced during the practice program.
He laughed and had a great time. First time ever! Everyone at school said he did a great job.
He is using more words and asking alot more questions than he was before. He is
remembering more words all the time.
He sat and watched the movie “Santa is Coming to Town” for an hour. He has
never sat and watched TV for that long. Previously he might watch for only five minutes or so.
We went and looked at Christmas lights last night. Kevin said the lights were very pretty. When
we got back home, Kevin asked “Mom did you like the pretty lights we saw?” I said they were very
pretty. This was the first time he has asked about the Christmas lights. He said he had fun
looking at the Christmas lights. He also said “Thanks for driving us around to look at
the Christmas lights.” These are new words! He sits and looks at the tree for a long time.
This is the first time ever! Kevin says he likes the tree. These are new words! He is
really interested in Christmas this year! He counts on the calendar, knows what day
it is and what is happening that day. Something new. Previously he did not know.
Today Kevin told his teachers “Merry Christmas and a Happy New Year, and no homework, right?” First time ever!
Date: December 29, 2012
Merry Christmas and a Happy New Year!
Kevin has shown alot more patience with people at Christmas time. Everyone
said he was so good. He talked to them and he would ask them questions. They were surprised
that he was so quiet. That is new, especially around a large group of people.
He has been speaking many more words, with longer sentences. For
example: he said “It is snowing outside, and it is very cold too.”
He had fun opening presents this year at Christmas time. That is new. Usually
Christmas is just too much for him to deal with, too many people and too much noise, but he just
had fun this year. He played all the next day with his new racetrack and four cars. That is
something new. Previously, he would play for a little while, and then he was finished. A
big change! In fact, he had such a good time that he was asking everyone if they would
play with the racetrack too. Something new!
Kevin told his dad where we went in town. He said we went to Michaels,
then we went to Fred Meyers for some food, then we went to a pizza place and brought home pizza for
everyone. That is new! He doesn't usually tell his dad much. So he has talked alot
more to his dad, and that is great!
Kevin sat quietly while I cut his hair! He was so still! He was really good!
Usually he doesn't sit very long, and he moves the whole time you are cutting his hair.
His haircut looks good. Kevin even said his haircut looks really good! He
also said “Thanks Mom!” He is showing much more patience than before.
Date: January 15, 2013
Kevin did not have his disc on for 3 days. The first day he threw his calendar outside in the
snow. The second and third days he had “okay” days at school. We received the disc order
on Wednesday. Once the disc was on, he had a great day at school. He was very
helpful: he passed the papers out to all the kids in the classroom, he
stood in line to wait for a turn to play jump rope, and he played really well at
recess. He was also helpful at home: he folded clothes, he
washed dishes, and he washed the counters.
Kevin had an IEP at school on Thursday. The teachers said that Kevin was doing an excellent
job at school around his classmates. He was very helpful, he stood in
line really well, he was talking more to the teachers and he was also
asking alot more questions.
Kevin met all his goals. All the teachers said he was moving forward and doing a great job.
Mom is so proud of Kevin! He is doing a great job!
Date: January 18, 2013
Kevin was asking to go to the animals in town, so we went to see the rabbits and fish in town since he
asked very nicely. Good job Kevin!
He is using more words all the time in longer sentences.
We had a birthday party for his Aunt Sandy. We all played card games. Kevin waited very patiently for
his turn. He was so good and helpful. He cleared the dishes off of the table
with his cousin. That is new. He even said “Happy Birthday” to Aunt Sandy - that is something new. We
all had a good day. Kevin helped make homemade ice cream with his cousins - that is something
new. Birthday parties get a little loud, and it did not bother him, which it usually
would - something new.
On Monday, Kevin said his sister and he had a lot of homework to do that day. That is something new.
Each week Kevin gets a report on how he does every day at school. He got an “E” for excellent.
He also received a paper apple with alot of stickers on it. This was recognition for all the work he
did at school, just like the other kids in the classroom. He did more than they expected
him to do. GREAT JOB KEVIN! The
teachers are very proud of Kevin. Kevin is moving forward and doing a good job!
He is asking questions like “How are you today?” He also says “hello” to everyone in the
classroom. Something new!
He is saying alot more words, he is asking alot more questions, and he
would like to have
answers to the questions he just asked. Good job Kevin!
He is doing really well! This is neat!
Date: October 7, 2013
"Kevin is doing very good at school this year. He walks to class all on his own. He has been doing all of his work and homework on his own with no help from us or his teachers.
We went on vacation in June to see my brother and their little baby girl. We haven’t been on vacation in 6 years because Kevin just would not go anywhere. Since he has been on Respen-A, we were able to go and Kevin had a blast. We went to the ocean and played in the water. We went to the zoo and we all had a great time. Kevin was so good everywhere we went. We all had a great time and Kevin asks every day if we can go back to the ocean.”
Date: June 17, 2014
We drove to Gilroy and stayed there for the night. I told Kevin it was going to be a long drive just like last year. He was fine with the drive. Then we drove to Disneyland the next morning. He was excited to see where we were going to stay. We went to Disneyland that night to see what was happening there. He was so good there. He would tell you what he wanted to eat and where he wanted to go. He liked the hotel, asked to go swimming. There was a lot of kids around and it didn't seem to bother him.
That was good news. He was just great there. He was telling everyone that he was Happy, and he had a great time.
The next day at Disneyland we started with splash mountain, he had a great time getting wet, he was right in front . We went on that ride 4 times, he tried Indiana jones and waited in line for 45 minutes and he was fine. He had alot more patients. We rode on 29 rides in two days. He like a train ride, the big thunder railroad. We went on that ride 4 times. He stood in line for 1 hour to ride lighten mc queen, A car race. He had a blast and he said he wants to go back. Wow this is just amazing for Kevin. Kevin has changed for the better since he has been on Respen -A 0.25 - 12C. It has really helped him so much with life in general for Kevin being on Respen - A. He communicates him everyone around him, not just Mom. He listens , and has so much more patients.
He can be around alot of people and kids , and nothing seems to bother him, like before. He talks to people, kids and they talk back to him. Something new. He tells everyone that kevin is just happy. This is great. He is improving everyday.
We are still on a 1/4 of the disc of Respen A , 0.25- 12C. He is doing fine so far. The first two days at Disneyland, I forgot to put on the disc. He was so good. So the next day , kevin asked to have his disc on. So I put the 1/4 of the disc on.
Since we have been home, kevin talks alot about Disneyland and he met Mickey Mouse , pooh bear and pluto. We got our picture taken with pluto, kevin thought that was neat.
Then we drove to Huntington Beach, and we played in the ocean, he had a blast.
Kevin told everyone that he wanted to stay in Gilroy at the same hotel. So we did and he told everyone that he wanted to go swimming, so we did.
We all had a great family vacation.
This is nice to be able to go places and have fun.
My family says, Thank you Elaine.
We also went to Santa Cruz and played on the beach, with alot of people and noise and It didn't bother Kevin. This is good. We all just had fun. Kevin is happy and he smiles a lot. This is nice. Respen-A has helped him alot.
Kevin helped pack is own bags to the hotel and to the car, he was very helpful, something new.
Kevin made honor roll again, at school . He was really good through the whole year of school. He talked and communicated really good. He teachers were really happy with him, and he did his work and was patient and he played really good with other kids and he would asked them if he could play a game , that they were doing. The kids liked him. So they would include him. Something new.
Testimonial from Paulette
Just a quick update on Sam and the Respen-A™. The changes, at first, were so subtle and very slow but now they are kind of piling on top of each other and becoming more obvious. Sam now tells us if he wants a "dot" or not. It seems like on the days he wears it, he may have a rougher day, but the next day he has a really great day. We have gone as long as 4 days without it. Partly to see if there was any regression and partly to make sure his BM were regular. We are getting much better at dosing the magnesium.
His language is really coming in and he's starting to do things that he should have done as a toddler, like pretend play, it's like he's going back and doing some developmentally appropriate things. He is so much more aware of his surroundings and the people in it. He's commenting on the weather and paying attention to when the dog needs to come in and go out. His memory has improved quite a bit too. And on the days we do not use the dot, he seems to retain all his gains. Just wanted to keep you up to date on our case. --Paulette
Testimonial from Lara
"We took Jack to the pediatrician when he was around 18 months
old, and when they discovered he was only saying one word (mama),
they decided to refer him to a developmental pediatrician and a
speech therapist. The new pediatrician wanted to be cautious and
recommended ABA for Jack. Tricare paid for him to have ABA 5
days a week, speech one day a week (45 minutes), and then
occupational therapy one day a week (after speech recommended
it).
We also started the GFCF diet and noticed some improvement,
though we only stuck with it for two months. Around that time, I
made an appointment with Dr. Kurt Woeller. He prescribed multiple
supplements, Diflucan, and Methyl b-12 shots. We noticed
significant improvements with these. When he posted information
about Respen A, we immediately got some and have been taking it
ever since.
From the time we met Dr. Woeller until now, Jack has gone from mute,
lacking engagement, and screaming every minute to not being on
the spectrum. We noticed continual improvement, but Respen A
gave him the final push. He started to concentrate better at
school and was able and eager to write. He now draws about 20
pictures a day and will sit and focus for extended periods. He
is in a regular preschool class. Though he still tends to be a
loner, he has several friends, and the teachers love him."
Testimonial from Marcia
Matthew is a 7-year-old boy with autism. Every three weeks a therapist at the school works with him to try and get him to communicate using a computer but all efforts have been unsuccessful until 3 weeks after starting Respen-A. Below are two transcripts from his teacher. The first one was 3 weeks after being on Respen-A and the second transcript was done 6 weeks after being on Respen-A.
CAN YOU BE SMART IF YOU CAN’T TALK -- by Matthew – Feb. 2010
This correspondence was typed between a 7-year old low functioning Autistic child and his Teacher after 3 weeks of being on Respen - A. He had not been able to respond before.
Mathew (In Black) Teacher (in Red)
FC w/Lisa 2/12/10
Hi Matthew, I would love it you would type your name with me
Matthew
Great job, let’s try to type some more!
Twinkle twinkle little (I wanted Matthew to just type the next word “star”) He had his own ideas!!
Ccaanyoubeverysmartifyouucaanttaallk
Yes, you can be VERY smart even if you can’t talk!! Some people can’t hear and they are very smart. Some people can’t see and they are very smart. Not talking has nothing to do with being smart. (I also explained that after each word you can put a space to show your word is done. He picked it right up!!)
Veryyhaappyvvery nnic too tell you I aam smart
I know you are smart. Mom will be so happy to see this, do you want to type to her?
Yes ggive herr tthhis tto read very happy to tell hheer I llovee heer
That is a nice note to mom, she will love it, do you want to say anything else before you go?
Vvvery hhaapppyggreaat too be ffreee from mmy body bbbleess be ggodd
This next session is after being on Respen -A for 6 weeks Matthew FC w/Lisa 3/04/10
Hi Matthew!
Get the fun typing
Are you telling me that typing is fun?
Would you like to type to Mom or Dad or Andrew?
He tries ttio get me mad but I just happy
He very funny
Who is he?
Mathew verbally said “Andrew Andrew” (This is the first time he has ever said his brother’s name.)
Zzvery happy to type to Andrew he willl be very happy
What would you like to type to Andrew?
Get him the nice very big tv
I bet he would like that! (Spontaneous he typed back)
teach mom how to do this
You would like mom to learn how to type?
Yess then then her typ e to me at homde
Would you like to type more or are you done?
Type mmore very happy
Better to get great great vuyse by typing better than bnot talking
